Sunday, June 24, 2012

Keep Austin Weird

Several months ago, Stanton asked me if I would like to a very special symphony with him. I asked him what the catch was. He's never shown any interest in going to the symphony before, so why now? What was so special about this symphony? When he told me, I couldn't believe it. The symphony called "Symphony of the Goddesses" and it was the music from the Zelda game series. Now I will admit my primary motivation to agreeing to go was to spend a whole 30 hours without worrying about the kids, but I actually did enjoy the symphony as well.

It was probably because as I watched the various scenes from the Zelda games during the playing of the music, I was reminded of how Stanton and I had bonded over the more recent productions. See, Stanton and I have a system that works for us, he does the actual playing of the game and I get the guide book and tell him where to go and what to do if he gets stuck. And then I realized, once again, that he was just the right amount of nerdy for me. (Not nerdy enough to want to dress up as a character, but nerdy enough to thoroughly enjoy the show.)

After the symphony, it was decision time. We were set to not pay any attention to the College World Series game that the Razorbacks were playing in. We had it recording at home and were set to watch it the next day (Saturday). But as we were heading to the car Stanton sighed and said "I'm really wondering how the Hogs are doing in the game." (I knew that I loved this man.) to which I replied "me too!" So Stanton whipped out his phone and checked the score we were tied in the bottom of the sixth. Stanton quickly looked up a sports bar on his phone. He said there was a Hooters nearby and I had recalled seeing it on the way in. So when we got back to the car, we had our heading. So there we were all dressed up and going to Hooters for the first time. The hogs ended up losing the game because of an inconsistent ump behind the plate. And we were not at all impressed by the Hooters atmosphere. It was a really sad building, there were crickets all over (I understand that the crickets are just a part of summers in Texas, but they had them inside and out.), and though I knew about the dress (or lack thereof) of the waitresses I was still a bit put off by seeing the butt cheeks of the young ladies serving us. But, Stanton thought the wings were good, so it wasn't a total loss.

The next day (Saturday, June 23rd), Stanton and I were not awakened by kids. We were able to just wake up on our own. It was fantastic. We decided to go somewhere fun for lunch, we settled on "mellow mushroom". Sure it's a chain, but it is a chain that we had never been to. We thoroughly enjoyed the meal complete with delicious pretzel appetizers, an adventurous potato pizza, and live music. On the way back we stopped by the outlets in Round Rock. We went into 3 stores- Disney store, a toy store, and (I feel dirty for even admitting I was in there) a Texas store. I went into the Texas store because I was trying to find something special for a very special little girl. We found good deals in the first 2 stores but I didn't find anything in the store that from here on shall not be mentioned.

When we returned home we were rested and ready to see the kids and get back to life as usual, but still kind of ready to run away together again.

Wednesday, May 30, 2012

Advocating an advocate

So, as I've been going through the process of trying to remember all of the stuff that was going on a year ago, there is something that really bothers me. This guy, Dr. Luiz Cesar - neurosurgeon at Hillcrest in Waco, actually told Stanton that he recommended not getting me any kind of treatment. He actually recommended not doing anything. He said since I was so young I would probably survive up to 2 years and that the treatments would probably not be worth it as far as the cost on my quality of life and the amount of time that I might gain. Of course I had no idea of this conversation until much, much later. But, it still irks me that someone that from what I can tell simply looked on Wikipedia to research the disease, had the nerve to say something so painful on a subject on which he clearly has no expertise. I have grieved several times for the pain that this one man caused my husband, family, and friends. I still hold a grudge toward this man. And if I ever see him again I'll probably kick him in the shins through a teary eyed face.

Fortunately for me, Team BASG is a group of fighters and immediately just blew him off. They started looking for alternatives. And through a crazy turn of events we ended up just where we needed to be, by the Grace of God.

But like I said this has been bothering me for the past few days and I need to get some things off my chest. If you find yourself in a medical situation and you don't care for the prognosis please go get a second opinion. Although I had a team of people making sure I got the best care, it has hit me just over the past couple of days that many people aren't so lucky. They would simply take what Dr. Cesar said and go with it. And if I was by myself, I probably would have done the same thing, especially in my drug induced stupor. So, just remember that if you find yourself in a medically precarious position, there's always something to try. So don't just take some guy's word for it, no matter what letters come after his name.

Secondly, only God knows when you will die. You could die in a car wreck today or you could live to be 120. There is no way for doctors or anyone else to know when your gonna go. So you might as well live your life. Praying for God's grace to sustain you through whatever trials you face. Don't let yourself get into a headspace of doubt and despair. Believe that the Creator of the universe will see you through. Have faith in His love you. And see the mercy He shows everyday by giving you another day to live for Him on this earth. He puts us through trials on this earth so that in our sin we will repent and draw close to Him. I have truly felt this to be a time of great blessing in my life. And as cheesy as it sounds, I hope one day you get the chance to live like you were dying. It really does change your perspective. You realize that the alternative to living is being with the almighty God and praising Him constantly. (If you don't have the security of knowing this, please contact me so that I can share with you what an amazing God we have.) and then you feel like the one who has the easy job. I mean essentially this disease has given me more time to spend with friends and family. I get to see my kids grow up. I get to know that there are people who love me more than they can express. I get lifted up in prayer constantly. I really feel like I get the better end of the deal.

Unfortunately, it's the people around me that suffer. They carry the burdens of worry and doubt. I see it on their faces sometimes, and I don't know what it would be like to be told that your spouse/ daughter/ sister/ best friend has a disease that there isn't a cure for. I am thankful for each of the people who have prayed for me. But, please also pray for Team BASG as a whole and individually. They are the most important people in my life. And sometimes they need the extra prayer boost even more than me.

Friday, May 25, 2012


Today I am super thankful for the overwhelming outpouring of prayers over the past year. I reflected yesterday about what the last year has done for me, and I am a totally different person than I was. Stanton is totally different than he was. But the amazing part is that we are closer to God than ever before and we are closer to each other than ever before. It's been an amazing journey. And to see the grace that God has bestowed upon us has been nothing short of a miracle. I remember praying with him before my biopsy surgery, but I don't remember the "run to the body" part. I remember him always being positive when he was near. I remember crying with him and him holding me. He has been my rock through all of this. It's is simply awe inspiring to see how the Creator is working in his life every day.

As you well know, I am celebrating year 1 AD (after diagnosis), my previous life is affectionately referred to as BC (before cancer). Unfortunately, I was pretty doped up a year ago and don't remember much of the days or the exact order that things played out, but I do remember the people who were there. The powerful outpouring of love and support for and from those who are most important in my life. From family to friends, you all came and prayed over me. And just sat with me. Most specifically, I remember seeing MA in the hallway at Hillcrest hospital in Waco. I had no idea that she was coming. And as she approached my room, I was moved to tears. I don't remember what happened exactly in the next few seconds, but she did not make it into my room. I think there may have been a sign left on my door to say that I was resting. But as I watched her walk away I wasn't resting, I was bawling like a baby. I also remember having one of the most meaningful prayer times in my life at Zale Lipschy. Three of my best friends ever gathered around and prayed over me. Allison, Alycia, and MaryAnn poured out their hearts to the God of the universe in one of the most impactful moments of my life. I remember Meredith and the Besancon's visiting me too. I remember my Uncle Philip and Aunt Sandy bringing the whole family dinner. I remember church friends making the trek from Waco, just to say hi for a few minutes. I remember hearing reports of the collective of people caring for my kids. I remember having all of my siblings gathered around my bed. I remember my dad staying with me one night when Stanton went home to be with the kids. I remember the care and concern on my moms face. I will treasure these memories forever. But it pains me to know that they were all hurting so much just outside my door. Everyone put on a brave face for me, but it didn't really hit me until almost a month later that there was a lot of pain and despair. And while I appreciated everyone being strong for me, it absolutely grieves me to think of the pain that they must have felt.

But today, as I sit here in the various waiting rooms writing this blog. I am still absolutely amazed by the number of people who have been praying for me over this past year. People I don't even know have shared on caring bridge that they have been praying for me because we have a common friend. There are over 30,000 visits to my caring bridge site. I am so humbled by this. Simply humbled by the abundance of care and compassion put forth by family, friends, and complete strangers. And I thank God for this trial, because of the immense blessings and amazing memories it has brought me.

Wednesday, May 23, 2012

A year ago

A year ago, things were ok.
A year ago I wasn't worried about what pills I had to take and when I had to take them.
A year ago I was not thinking about my mortality.
A year ago, I was looking forward to going to the doctor to figure out what was going on.
A year ago, I thought I may have a disease caused by a tick.
A year ago I wasn't concerned that my kids might have to grow up without me.
A year ago I was a much different person.
A year ago I knew that Jesus loved me, but I had no idea how much.
A year ago, I had just spent a wonderful time celebrating my sons 1st birthday with the whole family.
A year ago I never could have never anticipated being who I am now.

Today, I am looking forward to letting go to a year ago. Tomorrow, marks the one year anniversary of my diagnosis. And for the past year I've been battling the thoughts of "a year ago, things were normal." But tomorrow, I won't be able to say "a year ago." I have experienced some of the most amazing moments of my life! And it's all because I was diagnosed with cancer.

I have experienced some of the most spiritual moments, feeling closer to God than ever before. I was even baptized.
I have had great times with friends and family, including 2 trips to Disney World.
I have seen the pain and grief on the faces of those who love me most. And though it hurts me to see them hurt, I have been truly touched by the outpouring of their love.
I have seen love poured out for my children.
I have seen the love that my husband has for me and will never doubt it again.
I have seen the value in living for God every day and being in communion with Him constantly.
I have felt the power of being lifted up in constant prayer and being held in God's hands.

With all of these blessings, I'm definitely looking forward to the next year. And when I do look back on "a year ago" from here on out, I will think about all of the blessings that I've received from this whole experience.

Here's a couple of pics of the amazing blessings that I am so thankful for today.

Monday, May 21, 2012

Two for Two

Jacob is two!! It's taken me a while to get this up, seeing as how he turned 2 on May 2nd, but better late than never right?! We'll start with a couple of pics from his celebrations.

Good morning Mommy kisses! I love this little man!

Pancake breakfast at IHOP.

A little playtime at Baylor when we picked Daddy up. They were a little excited about the fountain.

After having hot dogs, carrots, and oranges for dinner it was time for a celebratory cupcake.

On Saturday May 5th we celebrated again with the whole family at Baum Stadium.

Oh, how I love this boy!

Our attempt at a family photo.

One tired little boy after lots of playing, eating, prizes, and 7.5 rather warm innings of baseball.
 Jacob is just like any typical 2 year old boy, loves messes, dirt, outside, playing/ fighting with his big sister, spitting, cars, trucks, etc. But he has taken a special liking to mowers and cycles of any kind. For the past few months he's been crazy for anything that sounds like a lawn mower or looks like a bicycle. Fortunately, we already had the cycle covered, because he got a tricycle for Christmas. He has been riding it pretty much every day since about mid- February. He rides it inside around the island in the kitchen and outside on the patio. So naturally we got him a bubble mower for his birthday. He has mowed our backyard nearly everyday since. I'm seriously considering trying to find something that actually works to cut the grass for the boy to use. (Speaking of "the boy", that has become my term of endearment for Jacob. He is just such a boy, so different from Chaselyn. He just likes boy things. For example, this morning he woke up and asked to watch Cars and he is currently playing with the shake and go cars he got for his birthday. It may not come across as a term of endearment, but I've always thought that boys are weird. Jacob is showing me just how wonderful the other gender is.) We also got him a bubble blower (as in leaf blower.) Both things were a hit. He also got lots of other prizes too from the family and some extended family. Lots of fun toys including a scooter, a Cars 4-wheeler, a pool, little people, play-doh, movies, balls, other fun toys and too much for me to remember. We feel truly blessed to have such wonderful family that loves our little guy as much as we do! And we were so glad to be able to spend Saturday at one of our favorite places and see some people we haven't seen in a while.

Jacob is a skinny boy. He weighs about 25 lbs. and is about 35 inches tall. He still wears size 12 month shorts, sometimes he can keep on 18 month shorts, but they are usually too big still. Mostly 18 month shirts too. He still eats a ton. I guess he's just very active. Actually I know he's very active. (tiringly so ;-)) Like I've said, he is always on the move. Bouncing off things, riding things, running around in circles, mowing, etc. He's a man on the move. His vocabulary has exploded just over the past couple of weeks. He's in the repeating stage. He'll mimic or at least try to mimic anything you say. Chaselyn especially likes this new feature in her little brother. It is hilarious to hear her try to break words down for him. I think on the way to church yesterday she broke her name down into about 6 different sounds for him to mimic. One of Jacob's newest tricks is to grab your hand and say "mere", as in come here, or "mon" as in come on. This was very effective while visiting with the grandparents. He'll also pat the seat when he wants you to sit somewhere. He likes to ask about everybody we've seen in the past couple of weeks. He goes through the list periodically throughout the day - Daddy?, Papa?, Granny?, Ducky?, CrawDad?, Matthew?, Sean?, etc. He seems to ask about more boys than girls, go figure. He also likes to be watched as he falls asleep. This is extremely strange to me. But, he just likes for someone to be there. He is in the big boy bed now and can climb out with little problem. So if you leave before he is asleep, he will come find you (any suggestions are welcome to help with this situation).

So that's our little boy! Amazing isn't he?! One of my favorite features is on my sweet boy is his belly button. Sometimes he's an inny and sometimes he's an outy. I just love to look at his bare belly and navel gaze as he runs around and plays. It's so stinking cute! He also still has the most amazing eye-lashes. He's a very handsome boy all around. His eyes are not blue any more really. Some days they still have a blue hue, but they are never the same color from one day to the next. He's a chameleon.

Jacob, my dear sweet son,

You are an amazing little boy and I can't imagine life without you. You have brought such joy and blessing to my life and so many others' lives as well. I love your adventurous spirit, your unshakeable determination, your wonderful smile, but most of all I love the whole package of who you are. We are already seeing that God has big plans for you, but we knew this before you were born. In fact, God told me before anyone else even knew about you. I remember the exact moment that God told me you were going to join our family. God spoke to me and said "His name is Jacob." while I was washing dishes. Sure enough, later that evening a test confirmed that you were on the way. As I think about that special moment between you, me and God, it makes me realize that I am just a steward set in place to watch over you and try to do the best I can to help you learn to love God. But ultimately, you are God's child. He knows you much better than I ever will, but I thank him every day for blessing me with you and your amazing gifts. I pray that I will be sufficient and capable of sharing with you the amazing grace that God can provide for you. You are mommy's special boy. And though sometimes I may do things that you don't like and discipline you when you are misbehaving, I hope you can always see the love of God through all of our experiences together, good and bad, happy and sad. I love you! And you amaze me constantly and teach me new things all the time. But most of all, you have proven that there is no limit to how much love one can have in their heart.


Tuesday, May 15, 2012


My sister is 21. She is smart, beautiful inside and out, an amazing aunt, an awesome person,  and I miss getting to see her. She was my baby doll when she was born. Then she was kind of a burden through my high school years. But now she is simply a delight. She does so much for others. She is an RA, she's actively involved in two different service fraternities, she does volunteer work out the wazoo, she's just good people. And I just wanted to take a page on the internets to dedicate to her and her awesomeness. Really, it's the least I could do.

I love you Goober! I hope you had a fantastic 21st birthday!

This is Chaselyn proudly displaying the cup she won with Aunt Rachel for doing the best air guitar at the baseball game. She won the cup and a free haircut for every person on the row from SportsClips. Aunt Rachel is pretty awesome!

Saturday, May 12, 2012

To my Momma...


Just wanted to write a little note to thank you especially for all that you have done this past year. I really cannot begin to express how much I have appreciated your willingness to just be there for me and the kids at the drop of a hat. But more than that, you have done it all while not only dealing with your daughter having brain cancer, but also dealing with your own cancer treatments. I cannot imagine what it was like to get the call last May. Just to hear that your daughter has cancer. But in some strange way, I think you were prepared. You were kicking cancers' butt and now you could help me to do the same. It's been extra special to commiserate with my own mom about the not so lovely details of treatments.  You are truly an amazing mom, and I wish I could be there in person to tell you this, but we both know that I wouldn't be able to get the words out.

I have said it before and I will say it again, you really can't begin to appreciate the love that your parents have for you until you have your own kids. Thank you for loving me when I was misbehaving. Thank you for encouraging me to stand on my own. Thank you for letting me fall down but being there to help me up if I needed. Thank you for your patience. Thank you for the unconditional love you have shown. Thank you for being you.

Happy Mother's Day Mommy! I love you and miss you so much!

Sunday, April 29, 2012

Power port

Can I just say that I am so happy to have my port in place. I can't imagine going back to multiple needle pokes (honestly it usually took them at least 5 tries before they would get a vein) every time I need to have blood drawn or an MRI scan. Even though I had just had it placed on Thursday, it was so easy and relatively painless when they drew blood and gave me chemo on Friday. They said it would probably be a little less painful next time, because it would be more healed. If what I felt on Friday was the most pain I should feel from the port ever, I can't begin to express how much I wish I would have got one of these earlier.

Now it is called a power port, because not only can they do blood draws and administer my new chemo, but they can also put the contrast dye for the MRI scans through. So as far as I'm concerned, I shouldn't have to be poked any more except through the port.

If you're interested in my bionic piece, you can read about it here:

Despite Stanton's insistence, it doesn't make any fancy power noises when in use or do much of anything else. It just sits there and waits to be used.

I have included a couple of pictures. One of the port off the website and one of me with my new friend. I'm using a new iPad interface for blogger, so I'm not sure exactly how this will turn out.

Thursday, April 12, 2012


On Tuesday the 10th I admitted to Stanton that I was experiencing slight weakness in the right side. I wasn't worried about it since it was even low grade enough that he didn't notice. I just figured it was residual from Fridays trip to the ER (they called me and told me that my platelets were low and said I would need a transfusion if it were true. This caused a stress induced reaction where I experienced more right side weakness than I have had in a long time. The weakness quickly went away on Friday. And my platelets turned out to be fine.) . Stanton was visibly worried about the revelation of my rigth sidie weakness, no matter how much i tried to minimize it. So on wednesday I was already trying to get in contact with my doctors, to talk with them about what was going on. I finally got a call back at 6:17. They said that it didn't seem like I had already had a seizure, but I should watch out. I got off the phone with the doctor, called Stanton and told him what they had said. My phone says that call lasted until 6:30. I was still not worried, I was sure that it was nothing. I started feeling a little weak, so I sat down on the couch not to much later, my leg started shaking, then cramping, then my arm,within seconds I was having a full blown (focal) seizure. My whole right side was flailing out of control. The scariest part - I was at home alone with the kids. I called for Chaselyn to come into the living room, the kids were both back in Jacobs room. Both of them came in while I was seizing. They thought I was playing the horsey game and promptly started climbing on me. I tried to get Chaselyn to get my phone for me. I told her it was on the counter in the kitchen. Remember I was still seizing so it took all I had to get the words out and they weren't coming out very good. She went and looked, but said she couldn't find it. Then she said "I got it momma." And showed me a play phone. I told her that I wasn't playing and that I really needed my phone. After she looked again, she said she still couldn't find it. So , I told her that it was ok. But i needed her to go over to the neighbors house and get help. I told her to go outside and see if the boys next door were playing. If they were tell them that mommy needs help. If not, knock on the door. I knew it was a lot to ask, but while seizing I couldn't think of anything else. The sweet little girl said ok I'll go get my shoes, she already had shoes. I pleaded with her that she needed to go now. Then she told me that she couldn't go outside without a grown up. By this time I was starting to regain composure. I told her that just this one time she could go. She went over to the door but then came running back to the couch. I told her that it was ok to be scared, but I really needed her to go over to the neighbors house. She was slowly walking toward the door again. By this time I had stopped seizing. And had regained composure. I was sure that I could now hobble over to the counter and get my phone. I told Chaselyn she didn't have to go. She immediately seemed relieved. I got to my phone, called Stanton back at 6:51. I estimate that the actual seizure lasted less than 5 minutes, but it seemed like an eternity. Stanton was only a couple minutes away. He called Michael and told him to get someone over to our house to watch the kids ASAP. Within minutes Stanton was home and we had 4 people at our house to watch the kids and pitch in to help. It took a while to figure out what we were supposed to do. The on call oncologist said that we needed to drive to the ER in Dallas. Then we were waiting to hear back from my neurologist to see if it was necessary to drive to Dallas. So when everything was all said and done, we were headed to the ER about an hour after my seizure. Stanton was very anxious and we actually got pulled over for speeding. (Stanton's first time getting pulled over ever.) the nice police lady let us go with a warning. Stanton was more bothered by the amount of time it was taking. When we finally got to the emergency room, we started the waiting game. Fortunately, they put me in a special waiting area away from the sick people. (apparently there is a vicious stomach bug going around Waco.) We sat in there for about 2.5 hours. We had good company though. When they moved me into a room, it was about 10:00 I think. I finally got the CT scan at 11:45. Doctor said there wasn't any bleeding or clotting. And the consensus was that it was probably scar tissue from the shrinking tumor that caused this episode. We were home around 2am. They prescribed some anti-seizure medication called Kappera and I should be talking more with my doctors in Dallas today. So that's my story. Like I said the scariest part was having the kids there while I was seizing. But based on their reactions, I don't think they knew anything was wrong, they thought I was just being silly. Which I am so thankful for. I am praising Jesus today for his healing touch, for his unwavering steadfast love, for constantly holding me in his hand, and for giving me the support network that I have.

Tuesday, March 13, 2012

Switch it, change it, rearrange it...

Model behavior...

The task take these shirts and make them suitable for a little girl.

The solution make pillow case dresses out of them. Done.

 Now, if I could just find a cute little girl to model them for me...
Oh I'm good.

Oh, she's good.

And that is all I have to say about that.

Thursday, March 8, 2012

Happy report, happy me

Well, after getting a wonderful report from the doctor yesterday I woke up this morning like I was on a mission. I got lots of odds and ends taken care of, went to my appointment with the radiation oncologist (she hasn't seen me since august, she was quite pleased), and made a t- shirt pillow case dress for Chaselyn. It's a busy time for me. I'm going to Disney World in 9 days, I'm helping organize two baby showers, starting to think about my sweet boy's 2nd birthday, we need to start organizing for the upcoming move, those baby showers will inevitably lead to two adorable babies that I am desperate to meet, and not to mention hippity hoppity Easter's on it's way. But thanks to the report yesterday I feel renewed by the Grace of God. I am so overwhelmed by the prayers that have been prayed on my behalf. And rest assured, if I could I would reach through the computer screen right now and hug your neck. I'm really ready to see some family and friends. I haven't seen my family since the first of the year. Friends here in Waco have been great, but some of my closest friends (including the 2 that I'm helping organize showers for) aren't so close. But between the Disney trip and the showers, I hope to get recharged. I learned something in my appointment yesterday that I hadn't understood before. I thought the plan was to do 12 rounds of chemo (i start my 7th round on Sunday) then reevaluate. The way I understood it, if the chemo was working we would stick with it until it stopped working. But I found out yesterday, that after 12 rounds, the side effects tend to get worse compared to the benefit. So I won't stick with the same treatment past August. Dr. Maher actually said that if it continues to be as effective as it has appeared to be, I should only be left with a little scar tissue by that time and then I would continue to get MRI's done every 2 months. Dr. Tiwani (radiation) said she could try re-radiation if there was anything left. But that's a decision that doesn't have to be made yet. That's all I got for tonight.

Tuesday, February 28, 2012

15 years - That's half of my life!

Stanton and I started dating on this date when we were both just 15. You can read about how it all went down here. And read me gushing about our relationship here. But this year in early August, I can officially celebrate being with my husband for half of my life. I still can't believe it. Most people won't be able to say that until their late 40's or early 50's. And when we get that old, we'll be able to claim spending over 2/3 of our lives together. But for now, I am getting close to passing the mark where I can say I've spent a majority of my life with Stanton.That warms my heart to think about.

It's not just about us being together for that long though, we've experienced a lot of things together, grown up together, and we have made a lot of memories together. We don't just finish each others sentences, we have the same crazy thoughts at the same time. And as much as I dislike it sometimes I can get in his head (it's a scary place) and know exactly what he is thinking. And he can do the same with me.

Over the past few months he has shown just how much he loves me. It turns out that when you are diagnosed with brain cancer, suddenly everyone just wants to tell you and show you how much they love you. But I had no idea how much Stanton truly loved me until I saw his reaction to me being severely sick. I used to ask him all the time (literally I would ask him at least once a day) "Do you love me?" or "How much do you love me?" I don't let those words come out of my mouth any more. Because I am secure in the love that my husband has for me. I don't even say "I love you more", because I don't think that it is true. From dealing with just the sheer amount of emotional drain that my diagnosis put on him, to helping me bathe, to making sure all the bills were paid, to researching my specific type of cancer and studying hard to know what is best, Stanton has exhibited his love in so many wonderful and deep ways, I feel blessed to have him by my side.

Tuesday, February 21, 2012

Long time, no type...

So it's Fat Tuesday and after promising to blog more, I got hung up on one post and just couldn't get past it. I will go back and complete that post later, because it was the post for Chaselyn's third birthday. I have done so much since my last post, went to Disney World, learned that 2 of my very best friends are pregnant, celebrated Christmas in my own home for the first time ever, saw a marked decrease in the size of my tumor, and had great times just hanging out with the kids. Speaking of kids, have you seen my kids lately? They are huge! And doing more and more amazing things everyday!

And that is my handsome husband with my little sweeties. We got them "Lady and the Tramp" for Valentines day and this is how they watched it...snuggled up on the couch, under the hog blanket. Jacob didn't last too long he doesn't have the patience for a movie, but Chaselyn snuggled her Daddy to sleep.

I love being home and having the opportunity to see little moments like these throughout the day. Most of the time the good stuff far outweighs the bad. There are those days full of poopy  diapers, screaming matches, and toy stealing where I get flustered, but overall I think I'm doing OK.

As far as the cancer goes, we've settled into a routine and will stick with this routine for the foreseeable future. I have a 28 day cycle where I take chemo pills for the first 5 days and then I'm off for the other 23. I've been trying to implement a low glycemic diet too as suggested by a nutritional oncologist. But I found that there weren't a lot of good snack options for me. So I would have a hard time eating a full meal, especially the week after chemo, and I would hardly eat anything at all. So we figured out for the 5 days I take the chemo, I can only have meat and vegetables throughout the day and then at night when I take my pills I can eat anything, especially sugar. The idea in doing this, according to the nutritional oncologist, is to starve the cancer cells so that they get really hungry and then when I take the chemo and eat the sugar, the cancer cells try to eat the sugar and end up munching on the chemo too. For the week immediately following my chemo I allow myself to have anything I want as long as I keep eating. Then I transition back to the low glycemic index diet for the last 2 weeks. Then start all over again. I get my brain scanned every 2 months. When I went in January, the scan showed a decrease in the size of the tumor and a thinning of the tumor walls. Praise the Lord!

So I'm back. Again. And this time it won't be so easy to get rid of me! I've given up FaceBook for lent. And have committed to reading the Bible more and blogging more. So now that I've made it public, I have to do it.